- 18トリソミーの会
- 疾患の情報、セミナー案内、掲示板。http://18trisomy.com/
- Imagine's Home Page
- 爪膝蓋骨症候群の症状や遺伝子検査について掲載。愛車の紹介もある。http://www.h4.dion.ne.jp/~fiat500/
- My sweet honey こうちゃん
- 18トリソミーの息子の成長記録。心室中隔欠損症などの経過、医学的文献の紹介。http://enjoy.pial.jp/~honey2000/
- VHLファミリーのサポートページ
- フォンヒッペルリンドウ病(VHL)について患者や家族の視線から情報提供。http://www1.odn.ne.jp/vhl_japan/
- ほっとChain
- フォン・ヒッペル・リンドウ病の患者会。病気の説明、医師一覧、掲示板。http://www.vhl-japan.org/
- アッシャー症候群でギャングのハンドルネームを名乗る男
- 闘病記、視聴覚障害者とパソコンなどの話題。http://www.h7.dion.ne.jp/~gang/
- 拓斗からの贈り物
- 18トリソミーの息子の出産から旅立ちまでを綴る手記。http://www.geocities.jp/junkun0108/
- 日本遺伝カウンセリング学会
- 学術講演会等の案内、遺伝学的検査に関するガイドライン、認定医師の育成について掲載。http://www.jsgc.jp/
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